Introduction to the Next Steps Community
With support from the HSE, the National Federation of Voluntary Bodies facilitates the ‘Next Steps’ community of practice, which gathers together the learning of organisations who are developing individualised and self-directed supports, and provides leadership and practical help to the wider ID sector as it progresses with this movement for the people who use services. The objective is to create shared learning and practical progress in implementing national policy for services and supports to people with intellectual disabilities in Ireland. The overall aim of this work is to ensure that people with intellectual disabilities are supported to live a life of their choosing.
In spite of the economic difficulties which we are all experiencing these are exciting times for people with disabilities, their families and the staff who support them. Many service providers are reconfiguring their services to provide more appropriate community based supports. The Disability Policy Review , Tranforming Lives process, Time to Move On from Congregated Settings (HSE, 2011) and the 'New Directions review of Adult Day Services (HSE, 2012) present important opportunities for all concerned. However an essential element in availing of these opportunities is the management of the transitions to new service options that promote community participation and inclusion.
The Next Steps community has published a report called 'The Journey So Far', which details its findings to date in terms of the enablers and supports to developing indiviudalised supports in Ireland.
Supporting service providers and people who use our services through evidence and shared learning
We believe that a key factor in supporting the movement to new individually responsive service options is practical guidance for the change management process required to transform services. To this end the National Federation have established the Next Steps Community.
One of the first actions of Next Steps was for the participating organisations to agree a vision of individualised supports . This vision was agreed by all participants and is at the centre of the initiatives that the members are working towards.
We have taken a case-study approach to progressing with real changes that support people in living a life of their choosing. Each of the participating organisations is working with one person (or in some cases more than one person) on an individual basis, developing new types of supports in line with the agreed vision. Every two months the participants come together to share what they have learnt as they progress with this journey.
Federation members are working together in new ways to ensure best value is achieved for the initiatives developed and to ensure a multiplier effect for the learning undertaken. We are monitoring the initiatives undertaken and identifying supports and barriers in the change process, in order to share our learning in the change process with the wider Federation membership and with all key stakeholders nationally.
Next Steps Project gathered key relevant policy documents to underpin the work being undertaken at a local level. These are made available on our website for quick reference.
We have also gathered some useful tools and resources and further reading. These materials continue to be updated over time as we continue learning and sharing information.
We also developed a set of quick reference policy summaries which contain the key goals of the Disability Policy Review, the Time to Move On from Congregated Settings Report, New Directions, and the National Housing Strategy for People with a Disability.
Shared Learning Resources Gathered through dissemination events
Over the course of the work of the Next Steps Community of Practice and Learning, a range of shared learning events have been held, to bring the knowledge gained to a wider group of individuals, family members, staff, organisations, Government Departments and state bodies.
A selection of the presentations that have been made are provided below:
- Voice Box Video Booth - Self advocates share their views on the lived experience of HIQA inspection - a short film from people with disabilities and their supporters, developed through the Next Steps community of learning. For more information contact alison.harnett@fedvol.ie or niamh.mcgauley@fedvol.ie. This film is now available on DVD and will shortly be available online.
- The Next Steps Project - Sharing the Learning Alison Harnett, Next Steps Project Coordinator, National Federation of Voluntary Bodies
- My Day My Way - Mary Reynolds, Daughters of Charity. Film presentation on a community hub developed by Daughters of Charity
- Iplanit - A tool to guide self-directed supports Ed Byrne and Kevin Hoey, Sunbeam House Services. Text to accompany the Sunbeam presentation
- Coming Home - Catherine's Story - Catherine Carey & Lavinia Donoher, Muiriosa Foundation. Additional clarification re funding of Catherine's support. Film presentation of Catherine's story
- A life of my own - Bernie Byrne, Mag Byrne, Louise Mahon and Theresa Nolan, KARE. Film presentation exploring family engagement in the movement to individualised supports.
- Home from Home - Ivan Deacon & Kevin Barnes, WALK.
- Our Own Life - Mary and William Seymour, photos from Mary and William
- Are we there yet? Mary O'Donovan, CoAction West Cork.
- Listen Learn Lead - Moving on from Congregated Settings into Community Living - LesleyAnn Kavanagh and Liam Tobin, Brothers of Charity Services South East
- Presentation to Seminar “Next Steps to Enabling a Good Life” Mr. Pat Healy, National Director Social Care, Health Service Executive
- Ideas and Actions sheet from Next Steps Conference
- The Next Steps Project (background, structure and themes of the project) - Alison Harnett, Next Steps Project Coordinator.
- Managing risk to promote independent living - my journey - Keynote presentation, Martin Dooher, Self Advocate and Next Steps Steering Committee member.
- Changing within congregated settings to embrace the vision of individualised supports - John Murphy, General Manager; Martina McCormack and Paul Power, Managers - St. Patrick's Kilkenny.
- The Community Inclusion Project - Liam Quinn, Day Services Manager - SOS Kilkenny.
- Phase 1 of the In Control Project - Louise Mahon, Project Leader & Christy Lynch, Chief Executive (KARE), Lisa McNabb, Self Advocate and Roisin McNabb, parent.
- The community-based supported living project Step-In - Benny Cunningham, Area Manager Brothers of Charity Services Roscommon, Niamh McMonagle, Locum StepIn Coordinator, Rachel Kelly, StepIn Project Member.
- Living a Life - CoAction's Next Steps Project Mary Seymour, Self Advocate and Next Steps Steering Committee member & Mary O'Donovan, Financial Controller, CoAction.
- If I can do it, you can do it too! Emily Meagher, Self Advocate
- Reconfiguration of current service delivery to support people to move from a congregated setting - John Collins, Self Advocate; Alan Blythe, Team Leader; Mary O'Donohoe, Team Member & LesleyAnn Kavanagh, Services Manager. Brothers of Charity Services South East
- Development of new model of individualised day supports in line with New Directions policy Pat Reen, Director of Services, Laura Creaner & Ashling O'Brien, Project Coordinators, Prosper Fingal.
- Family Leadership & Engagement - Stepping Out and Moving In(Part I) Ciara O'Keeffe, CNM2 - Daughters of Charity. Part II - Marie Lally, Parent and David Lally, Self Advocate.
In February 2015, The Next Steps Project was recognized as one of 39 “Innovative Practices 2015” at the United Nations headquarters in Vienna. The project was highlighted at the 2015 Zero Project Conference, an international summit on independent living and political participation attended by more than 400 experts in the field from around the world, for its achievements in supporting people with intellectual disabilities to live lives of their choosing and sharing the learning from developing individualised supports as a community of practice.
Contact us
For any queries or further details please contact the Next Steps coordinators, Alison Harnett: alison.harnett@fedvol.ie or niamh.mcgauley@fedvol.ie; or you can phone the National Federation at 091 792316.