Inclusive Research Network (IRN)

What is the Inclusive Research Network? (IRN)  

The Inclusive Research Network is a group of people with an intellectual disability who come together to do research on ideas and issues that matter to them.  

Inclusive Research Means….

Creating a place where people with intellectual disabilities are supported to do their own research. 
Sharing Power: People with disabilities are part of decisions at all stages of the project
Building a research community in Ireland.

IRN wins Award for their poster at NUIG Centre for Disability Law & Policy Summer School 2017 

The Inclusive Research Poster won the Best Poster Competition at the National University of  Galway Summer School. Brian Donohoe & Christina Burke were presented with first prize on Friday 23rd June 2017 the final day of the Summer School. 

The poster was done on the IRN’s most recent project Our Homes. The event was attended by people of many Nationalities including China, Kenya, Zambia, Iceland and the U.S. There were 36 different posters being exhibited all related to disability projects.

Brian Donohoe and Christina Burke presented the poster on behalf of IRN.  They had hand-out sheets which made it easier for them to explain the poster as they could hand people an A4 sized copy of the poster with the link to the Our Homes Report for people to look up themselves.

The IRN were complimented on their poster for it’s layout, colour and how easy-to-read the poster was and there was a lot of interest in the Inclusive Research Network and how it functions.  All members of the IRN recieved a certificate. 

 

The IRN have their own steering committee.  


The IRN offers training to members in how to do Inclusive Research.

IRN members make presentations on their findings from Inclusive Research both in Ireland and abroad. 

The Inclusive Research Network is supported by National Federation of Voluntary Bodies, The University of Limerick and Trinity College. 

The IRN also make submissions to Government on issues that are important to them. 

The IRN have one meeting per month on the second Tuesday of every month.

 

 

 

The IRN Steering Group Members are  

Chair - Nancy Leddin (see photo) 
Vice Chair - Joan Body
Secretary - Brian Donohoe
Public Relations Officer - Fionn Angus
​Treasurer - Laura Murray

 

Latest News from the Inclusive Research Network (IRN) 

 

Poster Presentation

IRN members took part in a  Poster Presentation at the Disability Law & Policy Summer School in NUIG on June 20th, 2017. The poster was designed by a group of IRN members which were supported by Nancy Salmon, UL.  

Brian Donohoe, IRN Secretary and IRN member Christina Burke spoke about the findings of our research project 'Our Homes' .  Brian and Christina had hand-out sheets with their poster which made it easier for them to explain the poster. They had a A4 sized copy of the poster with the link to the Our Homes Report for people to look up the project themselves.  Brian and Christina were complimented on their poster for it’s layout and how easy-to-read the poster was and there was a lot of interest in the Inclusive Research Network and how it works. 

 

Our next piece of Research will be on the topic of Health.........

IRN worked together to decide what Research topic they would like to do.   Members have voted that their next research topic will be on 'health'.  The group agreed to hold focus groups as a way of gathering information for their research. IRN members are currently agreeing what questions they will included in the Focus Groups. They also voted to use focus groups and photos as their method of research. Brian, Arthur & Ger counted the votes supported by Edurne.

​Education, Money and Health were looked by the group but the they chose HEALTH. 

 

The Key to the success of IRN is giving support people and creating a place where people with intellectual disabilities are enabled to do their own research. 

 

 

IRN publishes its first Magazine (May 2016) 

The IRN have published the first edition of their magazine called 'Working Together'.  It is a mixture of articles which will tell you more about IRN and it also includes some stories about IRN members. You can download a copy here

 
 

 

 

The IRN have a elected a new Steering Group (February 2016) 

The IRN have elected a new steering group as the former steering group had been in office for 3 years. All members of the IRN got the opportunity to put their names forward for election with the exception of the outgoing committee members.  However Brian Donohoe stays on as secetary as he is employed by the National Federation of Voluntary Bodies one day per week in this role.


The elections took place at the February 2016 meeting. Before the election of each role every candidate spoke about why they wanted people to vote for them. 

Easy to read ballot papers were given out. Elections took place one role at a time. Each IRN member got to vote. 

 

The new IRN Steering Group Members are

  • Chair - Nancy Leddin (see photo) 
  • Vice Chair - Joan Body
  • Secretary - Brian Donohoe
  • Public Relations Officer - Fionn Angus
  • ​Treasurer - Laura Murray

Read about the Roles of the IRN steering Committee 2012-2016 here.  

 

Reports written by the Inclusive Research Network

The Inclusive Research Network 'Our Homes' Report - November, 2015
The Inclusive Research Network 'Relationships & Supports Study: People with Intellectual Disability in Ireland'. 
The Inclusive Research Network  'Where we Live' Report
The Inclusive Research Network Report
Inclusive Research Network Easy to Read Report

You can download a copy of the reports here. 

 

Work of IRN during 2015.....  

Our Homes Report 

The Our Homes Report provides an opportunity to present evidence-based research that reflects the voices of people with disabilities, their experiences of moving to new homes and the supports that they received during the transition.  Minister Kathleen Lynch, Minister of State at the Department of Health with special responsibility for Primary Care, Social Care (Disabilities & Older People) and Mental Health, launched the Inclusive Research Network  on Tuesday, 17th November in the Castletroy Park Hotel, Limerick.  The day was inspirational to all involved with the IRN members themselves giving the presentations and running the day. 

You can  now download an electronic version of the Inclusive Research Network 'Our Homes' Report which is a book based on the most recent research project by the Inclusive Research Network. 

 

 
 
 
 
 
 
 
 
 
 
 

 

 

The day was inspirational to all involved with the IRN members themselves giving the presentations and running the day. 

Working in groups on the 'Our Homes' Report. 

All members of the Inclusive Research Network helped in analyizing the findings from the research study in a very inclusive way.  Each member got the  opportunity to work in groups and select text and pictures which will go into the Report of the findings. The members discussed how they would like to present the findings agreed to do it in a book with role playof the stories from the research to be presented at the launch.   

 

The IRN have a designed a new Logo

In September 2015 the Inclusive Research Network designed a logo so it could be more professional when dealing with outside agencies. It was a process of choosing from 5 or 6 different designs and colours. The colours and designs had been worked on by IRN members Christina Burke & Martin Dooher from Galway. The whole group voted on the final design and colour for the Logo. 
 

You can download a copy of the 'Our Homes' Report here.

To find out more about the report and the Inclusive Research Network please read more below......

 

IRN Projects 2014

The IRN  had a very busy year during 2014 ....

Submission to Government

  • A submission was made to the Department of Justice in September 2014 on the Discussion Paper on Sexual Offences and Vulnerable Persons.

Home & Independence Study

  • The IRN agreed on a topic for research called 'Home & Independence' where people were asked about their experience of both good and bad support which they received while moving from Institutions to Independent Living. 
  • ​Ethics Approval received for Home & Independence Study. 
  • Questions in the handbooks for the study have been agreed by the Steering Committee at a Meeting on March 18th in the University of Limerick.
  • A very successful Training Day for co-researchers took place on 31st March, 2014
  • Handbooks for the Home and Independence Study were developed and sent out to the co-researchers.   
  • Interviews took place during May and data was returned and transcribed during the summer of 2014. 
  • IRN members began the analysis of the 'Home and Independence' Study at meetings in July and October. They broke into small groups. 
  • IRN members hope to have a report on the study during 2015. 

IASSID

  • IRN submitted abstracts on the Home and Independence Study for IASSID Conference and some members attended IASSID and presented on preliminary findings of the study in July 2014 
  • Application was made on 30th April for Funding under the Erasmus+ programme for funding to set up a EuropIRN.  This funding application was successful.  However due to other factors the project was deferred but we hope to continue on with the idea of a European Inclusive Research Network in the future. 

 

IRN Projects 2013

 

  • The IRN steering committee had a meeting on 31st October to discuss getting ethical approval for the upcoming IRN study. The easy to read minutes of this meeting will be available shortly. 
  • Representatives from the IRN attended Assisted Decision Making (Capacity) Bill: Consultation Symposium in Dublin Castle on Wednesday 25th September, 2013.  They met with Minister for Justice Alan Shatter TD and spoke about the various aspects of the Bill. The IRN members also gave their submission on the Capacity Bill to the Minister and told him that the Bill was too difficult to read and understand and that and an easy to read version of the Bill must be published. 
  • Over 50 Inclusive Research members discussed the Assisted Decision Making Bill on Thursday 5th September2013. There was a vibrant discussion on the positive and negative aspects of the bill and a commitment was made to write a letter to the Department of Justice seeking an Easy to Read version of the bill. A plan to discuss the bill at local level and an agreement to prepare a submission to the Oireachtas was agreed.
  • The IRN is currently starting a new Research project involving Life Stories. The project is about collecting the life stories of people with disabilities who have made the transition from Institutions through to group homes through to independent living. The IRN members will sift through these stories for examples of good and bad support which helps and hinders people from making such a transition process and how people are consulted.
  • The IRN has held a number of meetings to organise the current project and agreed on the questions to be asked in the survey.
  • Pilots of these questionnaires are currently in progress to ensure the relevant information necessary for the project is being captured.

Research Image Thumbnail0

 

The Inclusive Research Network Steering Committee

The National Federation of Voluntary Bodies & the National Institute of Intellectual Disability (NIID) have provided leadership, infrastructure and resources for the IRN to date. With confidence growing within the members of the IRN, a new path was developing.  The question now emerged what was the future role of the NIID and FEDVOL going to be going forward. 

In late 2011 & early 2012 two separate meetings were held to plan the future work of the IRN. This included the research and training the IRN would carry out over the following years. At these meetings the IRN decided to form a Steering Group to direct the work of the IRN with the NIID and FEDVOL to play a supporting role. At the second meeting people put their names forward to be members of the Steering G1 untitled.JPGroup.

IRN Steering Group Members:

  • Chair - Patrick Santry
  • Vice Chair - Arthur Sexton
  • Secretary - Brian Donohoe
  • Public Relations Officer - Ger Minogue
  • Vice PRO - Joe McGrath

You can read more about the Steering Group here

 

 

Other News from IRN                   

  • Three members of IRN Brian Donohoe, Patrick Santry and Marie Wolfe gave interviews to the British Journal of Learning Disability which will be included in a special article to be published shortly.
  • Plans are currently underway for the IRN to become involved in social media through facebook and twitter.  Adrian Noonan the Public Relations Officer for Seasamh has generously agreed to assist IRN Public Relations Officer, Ger Minogue develop the necessary social media skills to reach a wider audience and promote the excellent work done by IRN.
  • In November 2012 the IRN made a submission to Health Information & Quality Authority on The Draft National Standards for Residential Centres for People with Disabilities.  Patrick Santry, Chairperson of the IRN, wrote a letter on behalf of the group to HIQA outlining their concerns to them. 

 

What are the Goals of the network?

  • To make links and connections between people with intellectual disability, researchers, university researchers, people from the community and staff in services.
  • To develop partnerships for research projects.
  • To support members to work closely together on common interests and research projects.
  • To listen to people with disabilities and their supporters so that research is useful and aims to make a positive difference in peoples lives.

ear hear listen

  • To support research that includes people with intellectual disability as initiators, researchers, and users of research findings.
  • To increase the number of inclusive research projects being done in Ireland.

 

Who can join?

  • People with intellectual and or multiple disabilities
  • People with an interest in inclusive research
  • University researchers
  • Staff and members of services
  • Members of self-advocacy groups 
     

link or chain

 

 

Reports written by the Inclusive Research Network

  • You can read more about the Inclusive Research Network here
  • The Inclusive Research Network launched the report entitled 'Relationships & Supports Study: People with Intellectual Disability in Ireland'
  • The Inclusive Research Network  'Where we Live' Report can be downloaded here
  • You can download a copy of the Inclusive Research Network Report here
  • You can download the Inclusive Research Network Easy to Read Report here
  • You can find out more about the Research Projects Undertaken By IRN Researchers here
  • You can read more about the National Survey on 'Where We Live' here

 

 IRN Activities 2012

  • On 17th February, 2012 a meeting was held to discuss the transfer of leadership of the IRN from the National Federation of Voluntary Bodies & the National Institute of Intellectual Disability (NIID) to the IRN members, people with intellectual disabilities. It was agreed that new positions would be created to make the running of the IRN more efficient. The positions agreed were Chairperson, Vice Chairperson, Secretary & Public Relations Officer.
  • Training on 27th April 2012 took place on the work involved with the positions in the steering group. People who were interested in becoming part of the Steering Group were invited to speak on what they could bring to the role.
  • Elections for members of the Steering Group took place on the 6th July 2012 and the IRN Steering Group was formed.
  • IRN Training Day took place on 6th September 2012 in Trinity College Dublin to help the steering group and the IRN members lead the IRN into the future and explore what support they needed. They also had a discussion on what research question/topic they would research in the coming year.
  • In the afternoon IT training took place and there was a discussion on the benefits and drawbacks of the IRN having a Facebook Page. Opinion was mixed and after some discussion about privacy this group decided that they would bring the discussion to the wider IRN group at a later stage.
  • In November 2012 the IRN made a submission to Health Information & Quality Authority on The Draft National Standards for Residential Centres for People with Disabilities.  Patrick Santry, Chairperson of the IRN, wrote a letter on behalf of the group to HIQA outlining their concerns to them. 

 

 

IRN Activities 2011

  • Two PATH workshops took place in September 2011 and November 2012To find out what was important to the members of IRN and to find out what they wanted from IRN. The PATH facilitators made a graphic chart which helped the members plan their goals, how they could achive these goals and the supported needed to do this.  
  • Members of the IRN attended a round table discussion on reform of the sexual offences act held in the offices of the Law Reform Commission in March 2011.
  • IRN members made a presentation at the Pavilion Conference on Sexuality in February 2011 and at the Scottish Consortium of Learning Disability’s conference June 2011. 
  • Read more about IRN achievements July 2011. 

 

 IRN Activities 2010

  • A Report on the Inclusive Research Network was launched on February 25th 2010 - a copy can be downloaded here
  • You can download a copy of the Easy to Read Report on the Inclusive Research Network here
  • Report on 'Where we Live' Project was launched by the Inclusive Research Network on 25th February 2010
  • IRN members made presentations at the National Self Advocacy Conference held in November 2010, and at the IASSID European Symposium in Rome October 2010.

 

IRN Activities 2009

  • You can read more about the IRN Event June 2009 during which members presented their own research and Prof Roy McConkey made a presentation on the benefits of inclusive research for people with disabilities.  
  • The IRN made a presentation at the NDA Conference in October 2009. 

 

IRN Activities 2008

  

National Institute for Intellectual Disability (NIID)

For further details about the Inclusive Research Network check out the NIID web page.


NIID Logo

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